Tuesday, February 5, 2013

Still waiting

It has been a bit since I posted so I am going to try and give an overview of the last week.

I got in to see my surgeon on Tuesday and they placed a drain back in because the fluid buildup (sonoma, very common after surgeries) was really bad. Tests came back that it was not infected though so that was good news. Because of this they put off my start date for chemo. I was suppose to start today. I know this is horrible but I am not upset that they are putting it off. I know, the earlier you start the earlier you finish but I am still wanting as much semi normalcy in my life for a bit longer. Other good news is that I am finally not in a crazy amount of pain right now. I am off all pain killers.

My PET scan (the one that they injected the radioactive stuff into me, made me drink a huge bottle of barium, and then took a ton of pictures) came back NEGATIVE for any other cancer in my body!!!!!! More good news!!! Even the spot that they still have to remove is not cancerous, yet.

This past weekend my best friends got together with me and we has a girls afternoon! It was much needed but there was a part that I was VERY nervous about. We were getting our hair cut and I was going to be picking out wigs. We had a delicious sushi lunch, can't have that when I start chemo. Then we headed to the salon. Everyone got in for their cuts before me so I started to panic sitting by myself and not wanting to deal with the whole wig thing! I got through it. Sam was actually finished before I had to go in for my first consultation so that made me feel a ton better! I got my hair cut and then went back in for the remainder of my consultation. All my girls were able to go back in with me for this one, YEAHHHHH! They actually made something so stressful into something fun! We found 2 wigs that I LOVE! You can barely tell them apart from my normal hair except they have AWESOME highlights:-) Then we started to have some more fun. I tried on a blond pixy cut wig (Bry is not a fan of the pixy cut) and sent the picture to Bryan saying that was the wig I was getting. He actually believed me, HAHAHAHA!!!! So all in all we had a wonderful day. Now to keep my husband from making faces and mustaches on my manikins is going to be harder than I thought. I am hiding any and all markers!

We did broach the subject with the kids that Mommy is going to lose her hair because of the medicine that they are going to use to make sure that the thing in her body that should not be there does not come back. They took it well. Bryan said that they were all going to shave their heads too. Mady was all on board, I don't think she got it. Bryan Paul pretty much said NO! On that same subject I have had many people including my husband, best friends, brother's who have said they are shaving their heads when I have to. This is one thing that I am not going to allow! I am honored that everyone wants to do this to support me but I really feel like it would make it harder for me. I don't have to look at myself  or I will be wearing a wig or a hat. If everyone else around me shaves their heads then I will have a constant reminder of what is going on. I hope that everyone understands and respects this! The only people who are allowed to shave their heads are Dennis and Dan:-) 

So for now we are waiting to hear back about my genetic testing and to make sure that my sonoma is under control  to make a date for my next surgery, either a double mastectomy with a port installation, or removing the remainder of the tissue and the port installation. I will keep you updated when I have an appt and what the results are. Until then chemo is put off until I am healed from the surgery.

I am enjoying my time with my friends and family and not having so many tests, scans, and doctor appts this week. You don't know how much you appreciate it until most of your time is focused on appts instead of your family.

For everyone that is here for us through these last couple of week as well as the up coming one we want you to know how much we love you all and appreciate everything that you are doing for us. Making meals, sending care packages, cards, flowers, gift cards, house cleaning and helping out with the kids make our lives so much easier and so loved!  From the bottom of our hearts we thank you!

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